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	<title>Ginger Sorvari &#187; lupus</title>
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	<link>http://www.gingersorvari.com</link>
	<description>Musings along my journey.</description>
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		<title>Long time, no blog.</title>
		<link>http://www.gingersorvari.com/2009/10/long-time-no-blog/</link>
		<comments>http://www.gingersorvari.com/2009/10/long-time-no-blog/#comments</comments>
		<pubDate>Thu, 22 Oct 2009 05:18:38 +0000</pubDate>
		<dc:creator>lovelyginger</dc:creator>
				<category><![CDATA[My Journey]]></category>
		<category><![CDATA[lupus]]></category>
		<category><![CDATA[one life]]></category>

		<guid isPermaLink="false">http://www.gingersorvari.com/?p=276</guid>
		<description><![CDATA[I&#8217;m embarrassed that I haven&#8217;t blogged here in so long &#8211; it&#8217;s been over two months! Not that I haven&#8217;t had ideas to write about; there are seven different half-written drafts on my admin page, on topics ranging from health care reform to the Gunflint Trail. But, none of these posts are complete, and along [...]]]></description>
			<content:encoded><![CDATA[<p>I&#8217;m embarrassed that I haven&#8217;t blogged here in so long &#8211; it&#8217;s been over two months! Not that I haven&#8217;t had ideas to write about; there are seven different half-written drafts on my admin page, on topics ranging from health care reform to the Gunflint Trail. But, none of these posts are complete, and along the way each has become pretty stale (at least in my own mind). So alas, the blog sits dormant.</p>
<p>On the bright side, during this time, grad school has started and my business, Sagefisher, continues to grow. More on those later.</p>
<p>For now, I also wanted to share something that I rarely talk about, and even more rarely write about: My life with lupus.</p>
<p>In case you&#8217;re not familiar, lupus is an autoimmune disease &#8211; one where the immune system gets, shall we say, a bit confused. Instead of doing its job by fighting off diseases, the immune system in someone with lupus starts attacking various parts of the body, as if they were a disease. For me, my immune system seems to have an obsession with my kidneys, which apparently look rather sinister to my immune system.</p>
<p>This struggle, with my own body, is one I&#8217;ve lived with for the last twenty years.</p>
<p>In recent months I&#8217;ve started to talk a lot more about my disease, my journey, and what I can do to help others who live with lupus. In fact, I&#8217;m now on the board of the <a title="http://lupusmn.org/" href="http://">Lupus Foundation of Minnesota</a>, and for the first time in twenty years, I&#8217;ve written <a title="http://lupusnews.ecndigitaledition.com/magazine.aspx" href="http://lupusmn.org/documents/LupusNews_Fall09.pdf">my story</a> for their most recent newsletter.</p>
<p>What does all this mean to me? First, I feel like I&#8217;m being more open, more transparent about who I am. That&#8217;s a great feeling, especially since a big part of my business is to tout the benefits of transparency. Also, I&#8217;m thrilled to be taking steps to help other people (especially women, who are impacted by lupus nine times more often than men).</p>
<p>Most importantly, though, I feel like this is major progress toward a personal goal of mine: to integrate all the parts of my world into one cohesive life. Long ago, I kept my world compartmentalized &#8211; my work was quite distinct from my family, which I kept separated from my social life and my personal relationship with God. Then about ten years ago, I started thinking about all the interconnectedness of these parts, and actively trying to lead (what I call) One Life.</p>
<p>But, there was one exception. My lupus always seemed too risky. Too personal to share, outside of a very close circle of friends and family. And so, my One Life goal never really felt real to me.</p>
<p>Now, I feel like I&#8217;ve taken my first big, risky step toward One Life.</p>
<p>Now it&#8217;s real.</p>
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